In March 2009, when our daughter Katelyn was four months old, she was diagnosed with a very rare neurological condition called Alternating Hemiplegia of Childhood. At the time, all that my wife Maire and I were told was that it was a very serious condition and that it was going to be difficult to say what quality of life Katelyn would have or how she would develop and progress. As parents, we were obviously stunned by this news. What made it trickier for us was that there was no real information or support network available to us at the time, certainly none in Ireland. It was this experience that inspired us to set up the AHCI. This is our website. We hope the site will be a source of information and support for those parents in Ireland and further afield who are given the news their child has AHC. I hope you take a moment to visit the site and pass the link on to those you think might be interested in it.
Thank you.
Tom O’Brien
AHCI
