Stuðningurinn sem AHC samtökin fengu í Reykjavíkurmaraþoninu var ómetanlegur og langt umfram okkar björtustu vonum.
Við vorum með 23 frábæra hlaupara sem hægt er að sjá hér:
Okkur langar að þakka hlaupurunum okkar og öllum sem hétu á þá innilega fyrir stuðninginn.
Hérna er nokkrar myndir frá hlaupinu:
10km hlauparar ásamt stuðningsliði, Fríða þjálfari (lengst til vinstri) átti að eiga þennan dag, Sara (fyrir miðju)keppti í Latabæjarhlaupi og Þórdís (næstlengst til hægri) hélt uppá 62 ára afmælið sitt þennan dag.
Í alla staði frábær dagur
Gunnar, Bjarni og Sigurður
Ragnheiður, Viktor Snær, Sunna Valdís og Sigurður
Ævar og Barbara
Sunna´s brother Viktor (11years old) has been on the radio and TV to promote the AHC association. We have 23 registerred runners and the support is overwelming.
The 50 krona pendant that the AHC association is selling is now on Ebay http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=260639110425
You can now donate to the AHC association by logging on to http://hlaupastyrkur.is/godgerdafelog/nanar/4872/ahc-samtokin-a-islandi–ahc-association-of-iceland and supporting one of the runners that are running for the AHC association of Iceland.
Chase bank was giving donations to 200 charities. AHC foundation in the states was one of the 200. This is very good news for the foundation and all the AHC patients. Beside the fact that the money will come handy it also raises awareness of AHC and could lead to more funding hopefully.
Chase Community Giving is back to give away another $5 million, and you help decide which 200 local charities receive donations. Just search, vote, and share your enthusiasm with your friends. It’s a new Way Forward for giving. AHCF is eligable for 20.000$ donation if we vote the foundation in the top 200 so please vote. http://apps.facebook.com/chasecommunitygiving/
The Reykjavik marathon will be held on the 21st of August 2010. You can sponsor a runner for a certain amount for each kilometer that he runs and the amount will then go to a charity of your choice. AHC association of Iceland is among the charities you can choose. More information on:
Article by Jeffrey R. Tenney and Mark B. Schapiro about AHC.
AHC Child neurology
We have now started to sell the 50kr necklace. I took some with me to a conference in Punta Cana, Dominican Republic, and sold them all. Everyone loves them. They are ideal as a gift or just for yourself;)
A Patient Network Meeting will be held on 21 November, Sunday to continue the integration and empowerment of patients affected by rare paediatric neurological diseases by having their input and involvement in nEUroped.
The second day, 22 November, Monday, dedicated to Best Practices for Developing and Maintaining Patient Registries in the European Union will be an open event to nEUroped partners, Patients Network members and outside participants.
The final day of the nEUroped Extended Network Meeting, 23 November, Tuesday will be to review the work accomplished in the nEUroped project and develop the future of the nEUroped Consortium: extend the Network to members outside the project and to patient networks.
Meeting details and registration information will follow in the next nEUroped newsletter and on www.neuroped.eu. For immediate questions please contact Tsveta Schyns (email@example.com) and Francis P. Crawley (firstname.lastname@example.org) for information about the Extended Network Meeting. If you are a patient or patient representative interested in attending, please contact Anna Kole (email@example.com) for information on travel and subsistence reimbursement