EURORDIS meeting in London march 2009

AHCAI was invited to join EURORDIS ( ) for a meeting in London March 2009.

nEUroped network meeting 21 mars 2009

Introductions were made:

First there was a couple from Nederlands with 7 year old daughter with AHC and 5 year old daughter not affected. Founded the foundation in the Nederlands.

2 from Italy (Italian association)

4 from Denmark (Danish association) 2 couples that have daughters.

A couple from Iceland with a 3 year old daughter (us)

Lesa áfram „EURORDIS meeting in London march 2009“

Family meeting in Chicago July 2008

AHC family meeting in Chicago 25-27 July 2008

We (Sigurdur, Ragnheidur and Sunna) were invited by the AHC association of the United States to join them in a family meeting in Chicago. This would be a 2 days meeting with speakers from the States, Canada and France. Also a team of specialists that Dr. Swoboda from the University hospital of Utah headed would be examining the patients.

Lesa áfram „Family meeting in Chicago July 2008“