Íslenskir tenglar
Other organisations
Various links
- BRAIN scientific journal
- Committee for Orphan Medicinal Products (COMP)
- Dystonia society
- European Network for Research on Alternating Hemiplegia
- EURORDIS – The Europian organization of rare diseases
- I.B.EA – The Italian bioBank for Alternating Hemiplegia
- Italian biobank
- National institute of neurological disorders and stroke
- National organization of rare disorders
- nEUroped
- Orphanet
- Rare disease communities
- The dystonia foundation
- The European Union Committee of Experts on Rare Diseases
- The orphan drug act from 1983
- University of Utah – Department of Neurology
