The European Organisation for Rare Diseases (EURORDIS) is delighted to announce its first fundraising Gala Dinner to be held in Brussels, Belgium: capital city of the European Union. This event will be launched on Rare Disease Day: 29 February 2012 at the Hotel Le Plaza – Brussels. The net proceeds collected from the Gala will [...]

Jeff Wuchich Discusses Rare Disease Day, National Push For A Cure
For the podcast click HERE

Landsnet made a generous donation to the AHC association fund. Thank you so much for your support.

Rolf Johansen supports the AHC Association of Iceland by contributing to the AHCAI fund.

Toyota Iceland supports the AHC Association of Iceland by contributing to the AHCAI fund.

Orphanet is a portal for rare diseases and orphan drugs
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An interesting summary by Dr. Runólfur Pálsson
Rare Diseases

Alternating Hemiplegia of Childhood (AHC) samtökin hafa það markmið að stuðla að og styrkja rannsóknir á AHC . Líkurnar á að barn fæðist með AHC eru áætlaðar 1 á móti milljón en um 600 einstaklingar eru greindir með AHC í heiminum.
AHC lýsir sér í köstum sem skaða heilafrumur þannig að einstaklingar með þennan sjúkdóm þurfa [...]

Will we find a cure for Alternating Hemiplegia in 2012?

We have all the capabilities to at least find the cause of Alternating Hemiplegia. In the last years and especially in 2011 we have laid the foundation to make 2012 a major stepping stone for Alternating Hemiplegia. With leading associations like AISEA, AFHA  and [...]

WISHING YOU AND YOUR FAMILY

A MERRY CHRISTMAS

AND

A HAPPY NEW YEAR