AHC Kids – One in a Million campaign started today. The idea is to get 1 million people to donate 1 usd and help fund important research for AHC kids all around the world. For more information on how to donate click HERE
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Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and the National Alliances of Patient Organisations at the national level February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient [...] Short film from 2009 Click HERE Nordic Conference on Rare Diseases will be held in Reykjavik May 31 and June 1, 2012. The meeting will focus on co-operation to improve knowledge within the Nordic countries regarding Rare Diseases. More on the conference HERE The European Organisation for Rare Diseases (EURORDIS) is delighted to announce its first fundraising Gala Dinner to be held in Brussels, Belgium: capital city of the European Union. This event will be launched on Rare Disease Day: 29 February 2012 at the Hotel Le Plaza – Brussels. The net proceeds collected from the Gala will [...] Jeff Wuchich Discusses Rare Disease Day, National Push For A Cure For the podcast click HERE |
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